Meta's and Penny's story

Our fundraising work relies on the generosity of supporters like you remembering us in your Will. You don’t need to leave a fortune, but anything you do leave will help to keep delivering the very best care to everyone who needs it – for generations to come.

Here we meet Meta and Penny who share why they felt it was important to leave us a gift for the future.

Our fundraising work relies on the generosity of supporters like you remembering us in your Will. You don’t need to leave a fortune, but anything you do leave will help to keep delivering the very best care to everyone who needs it – for generations to come.

Here we meet Meta and Penny who share why they felt it was important to leave us a gift for the future.

Meta

Meta, had successful surgery for a benign brain tumour at The National Hospital in 1988. Since then both her husband and sister were diagnosed with neurological conditions.

“My husband had Parkinson’s and has sadly passed away.  My sister has multiple sclerosis – she’s been living with it for more than 30 years now,” says Meta. “These are cruel diseases for which there is no cure and little hope.”

With this in mind Meta has made The National Brain Appeal a major beneficiary in her Will.

“The lack of a cure for so many debilitating neurological conditions is a strong motivator for me to want to help, and by leaving a legacy I can be part of something that will provide hope for others.

“I would love my legacy to be used for research – this would feel as if I am making a positive move against something that has had a huge impact on the people close to me,” she explains.

Penny

Penny was diagnosed with Multifocal Motor Neuropathy (a rare condition in which focal areas of multiple motor nerves are attacked by your own immune system) in 2004.

She has worked in international film distribution since the early 1980s. She worked on the film Dirty Dancing and life seemed perfect. In 1986 she had an accident and broke the 4th and 5th vertebra of her neck, spending 18 weeks in hospital. She made a full recovery and returned to work.

In 2004, Penny noticed that the fingers in her left hand had started to drop and that she had no energy. She was referred to The National Hospital for Neurology and Neurosurgery (NHNN) and was diagnosed with Multifocal Motor Neuropathy (MMN), which she discovered was due to her accident. Penelope started treatment of IVIG infusions.

In 2006 a Day Care clinic was established at NHNN with a team of specialist nurses.

“While sitting having our treatments, people began to communicate with each other. MMN is rare and the landscape was very lonely. It is still a relatively unknown condition so to be able to share experiences was such a huge step forward.

My own personal journey with MMN makes me want to give back in whatever way I can to the fantastic team of consultants and nurses who go above the call of a duty on a daily basis and who provide us all with such a comforting  support system. That is why I have left a gift in my Will to The National Brain Appeal.  I want to help in any way I can to fund crucial research into all neurological conditions going forward.”

Get in touch or download our Will Pack

If you have any queries regarding leaving a gift in your Will to The National Brain Appeal, get in touch by calling 020 3448 4724 or email anna.macleod3@nhs.net.

Please note that we cannot offer advice. It’s a good idea to speak to a specialist who can make sure that your wishes are met and to get professional advice on areas such as Inheritance Tax.

Where Next

What we fund
Events & challenges
A Letter in Mind

Subscribe to our e-letter or newspaper

GET IN TOUCH

Address

The National Brain Appeal
3rd Floor
Ormond House
26/27 Boswell Street
London WC1N 3JZ

020 3448 4724
info@nationalbrainappeal.org

 

Registered Charity No. 290173. A limited company registered in England. No. 01844281