Shining a spotlight on rare diseases

Shining a spotlight on rare diseases

Today is is Rare Disease Day and to mark it, we’re officially launching Rare Dementia Support – a fund that is the result of a merger of two existing funds – the FTD Support Group Fund and the Myrtle Ellis Fund. TheMyrtle Ellis fund has been around for nine years and...
“A warm welcome to 2016”

“A warm welcome to 2016”

Another year whizzes to a close and as usual, it was an ‘event’ful’ one. More people than ever took part in challenges, donning pyjamas, Santa suits or running gear in the name of The National Brain Appeal, raising amazing amounts to fund future developments in...
“Painting cheered my brain up”

“Painting cheered my brain up”

Carolyn Nicholls learned about The National Brain Appeal after being treated at The National Hospital for a cavernoma. She contributed to our art exhibition, A Letter In Mind, after turning to painting after her illness. “Still got all your marbles?” Mr Kitchen asked...
“My tumour was in a dangerous position”

“My tumour was in a dangerous position”

Around eight years ago my mouth became very painful. I went to doctors and dentists and asked them to remove my teeth where the pain was. But nothing eased the pain and I was referred to several specialists who carried out scans on my face − one told me I had...
“There are always challenges in life”

“There are always challenges in life”

It was 1977 − the year of the Queen’s Silver Jubilee and street parties were being held everywhere. One day I was at primary school and the teacher set us an assignment with some questions on the board to complete. He said there would be a prize for the first person...
“I turned my birthday into a Pyjama Party”

“I turned my birthday into a Pyjama Party”

I’m about to turn 33 and I wanted to celebrate my birthday in a different way.  Unlike when I was younger, I’m not that fussed about going clubbing anymore – I prefer doing something where I get to spend quality time with my friends. So I decided to combine my...