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Shining a spotlight on rare diseases

Today is Rare Disease Day and to mark it, we’re officially launching Rare Dementia Support – a fund that is the result of a merger of two existing funds – the FTD Support Group Fund and the Myrtle Ellis Fund. The Myrtle Ellis fund has been around for nine years and here, one of the sisters behind setting it up, Susie Shaw – tells us how it all came about the creation of the new fund.

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Posted on February 29, 2016 2:56 pm

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